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Connie Panzarino (1947 - )

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The Me in the MirrorThe Me in the Mirror by Connie Panzarino

Born with a rare muscle disease, the author recounts the challenges of growing up handicapped, her early adulthood and dawning political activism, her relationship with Vietnam veteran Ron Kovic, her lesbianism, and her work as a disability rights activist. (Amazon.com)


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Ask Connie!

from Access Expressed!

Advice and information from Connie Panzarino. Part of a web site which contains questions and answers about disabilities.

 

"The Me in the Mirror"

from Disability Net

Writer; activist and artist Connie Panzarino was born in 1947 with the rare disease Spinal Muscular Atrophy Type III, formerly called Amytonia Congenita. Throughout a childhood filled with both pain and joy, she strove to define herself: "I knew I was different. Now I had a name for the difference, like being Italian or Jewish. I was an Amytonia. I didn't understand if that meant that I would never walk, or if all it meant was lack of muscle tone. I didn't know that most children with this disease die before they're five years old...

 

"The Me in the Mirror" adapted for the stage

from Theatre Mirror

Paul Kahn's stage adaptation of Connie Panzarino's autobiography "The Me in the Mirror" is a stage rarity: it's the kind of snippet-scened docu-drama most people would be content to see as a public-service movie. But even done on a nearly bare stage with black rehearsal clothes on five actors doing fifty-eight distinct roles, live action brings immediacy and power and, in Daniel Gidron's swiftly moving production, all the triumphs, pains, pleasures and hurts of a torrentially willful life. And the vigor of the playing never flags...

 

Excerpt from "The Me in the Mirror"

by Connie Panzarino

My parents said that as an infant I was an active, good baby who slept well and delighted all the relatives. When I was seven months old, they said that I couldn't pull myself into a sitting position and could not maintain my head and neck balance the way other children did. I never crawled. I was different, but no one knew what was "wrong" with me. Soon after began years of doctors, medicines and expensive treatments and there was never enough money to pay for them...

 

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